Breaking the Silence A Caregiver Voice Frances H Kakugawa Sandra Williams 9780976269779 Books
Download As PDF : Breaking the Silence A Caregiver Voice Frances H Kakugawa Sandra Williams 9780976269779 Books
Breaking the Silence is an essential book for Alzheimer's caregivers. It's a thoughtful and honest look into what caregivers face each day, coping with incredible pressure, anxiety, and difficult decisions. Frances weaves her poetry and that of six other caregivers together, along with journal entries and advice for the novice poet.
Breaking the Silence A Caregiver Voice Frances H Kakugawa Sandra Williams 9780976269779 Books
I'm not the author of this review. I'm the publisher. But read on. It's TOO GOOD.I sat down two days ago and read Breaking The Silence from cover to cover. I found some of the statements and feelings expressed so powerful and helpful. I have been sailing along under your generous attention, thinking I can go into this caretaking ahead of me, fortified and strong. I am not so sure but the poems and stories help. The story of "Nora" was beautiful in that she kept having dreams (a cruise) making a scarf for you.
Elaine Okazaki's writing was consoling in that she cared for someone who was "feistie" and she survived and wrote with a sense of humor. I think that is how I will survive, for I live with a man who requires regular doses of humor for both of us.
Red Slider's views of Isobel are so moving. And does he have red hair? The story of how you discovered each other and then became a care-taker-of-a-care-taker is inspirational. "The Day You Became Isobel" was a well written observation as to the "self" within each of us. Not Mom or Dad but who we were before that.
Of course there are Genie's poems so genuine so Genie... and her story goes on. I saw where they closed one of the adult centers and hope it wasn't the one where she took her mother.
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Tags : Breaking the Silence: A Caregiver's Voice [Frances H. Kakugawa, Sandra Williams] on Amazon.com. *FREE* shipping on qualifying offers. Breaking the Silence</i> is an essential book for Alzheimer's caregivers. It's a thoughtful and honest look into what caregivers face each day,Frances H. Kakugawa, Sandra Williams,Breaking the Silence: A Caregiver's Voice,Willow Valley Press,0976269775,Health, Mind & Body General
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Breaking the Silence A Caregiver Voice Frances H Kakugawa Sandra Williams 9780976269779 Books Reviews
Breaking the Silence A Caregiver's Voice by Frances H Kakugawa is one of those rare resources that serves on a multitude of layers. The book is neatly divided into three parts-the first a mini-anthology of poetry and prose, the second a look at the unique challenges that come with caring for someone who has Alzheimer's, and the third an outline of how to lead a poetry writing workshop.
Drawing on her own experience as caregiver to her mother who had Alzheimer's disease, Kakugawa shares herself in both poetry and prose and gives voice to some of the people she encounters in her work as a workshop leader. The first part begins with her gentle but dominant presence. The reader cannot help but feel her compassion and empathy as she then introduces a few of her workshop members who share their own stories in their own words. In only a few pages it becomes quickly apparent that although each person is writing about the same disease, the manifestations and the personal experiences are unique.
The second section returns the reader to Kakugawa's own exploration of the two faces of Alzheimer's and she shares one more poem by another workshop participant. This is actually the shortest section and I am not sure why it was not more fully developed. I'm not even sure that the implied theme of this section wasn't more thoroughly explored, by implication if nothing else, in the previous section.
The third and final section outlines her workshop, how she begins each series of workshops and how the evolve from one week to the next. She offers some suggestions for workshop facilitators while also reminding the reader that not all poetry related to caregiving is about Alzheimer's or even about the relationship between the caregiver and the caregiving recipient. After a brief glossary of poetry terms, she shares some other poems she's written about her own experience with being told she had a mass that needed to be biopsied.
The strength of this book lies as much in the idea of using poetry to help process experiences that are often difficult to describe as it is in the various pieces shared for, between the lines one can easily recognize not only how different the details may be but also how all caregivers have a shared experience no matter how isolating that experience itself may be.
This eloquently conveys the heart of a caregiver, no matter what the chronic medical condition might be.
Each author faces a roller coaster ride of emotions with seemingly no outlet. Coming together and writing about the daily tasks, responsibilities, emotions that flit all over the spectrum, and dog tiredness of caregiving provides salvation. This books shows that a caregiver is not alone in experiencing the ups and downs of dealing with this insidious disease. That, in fact, there is a cloud with a silver lining to behold if only we will look.
This book is a must for anyone with a family member or friend who is struck with any form of dementia. Give that person this book, a nice journal and some colored pens!
My wife has Alzheimer’s and I have been caring for her for 4 years 24/7. Nothing prepared me for the exhausting and emotionally draining experience of being a full time caregiver. Even with help from friends and family the demands of caregiving left little time for a personal life. This sense of hopelessness and despair led me to read “Breaking the Silence” a remarkable and insightful book that became my catalyst in embracing caregiving as a life-changing experience. In prose and poetry Kakugawa and company writes a compelling narrative giving voice to those with Alzheimer’s and inviting caregivers to enter the world of their patients and speak for, to and about them. This book has given me a new lease on life and out of the drudgery of caregiving.
BTS empowers and challenges you to find joy in caregiving, Kakugawa gives you the tools to accomplish this, pen and paper. I am living proof of this transformation, I have been writing poetry for a year and have employed this tool set to answer my critics, share my pain, speak for my wife, cry for help and vent my anger and disappointments. Kakugawa recognizes that not everyone has the stuff to be a caregiver but those who do will find the divine and be at peace with oneself.
The poems shared by Kakugawa and her colleagues reflect my own heartrending accounts of shame and guilt for wishing to be released from my burden, resentment towards family members for promises not kept and crying with my wife when words failed to express what’s in her heart. I found solace in reading these poems just as if they were mine.
Finally, Kakugawa writes in her Dedication “I wish I had a magic wand, but since I don’t this book will have to do until there is a cure.” I agree wholeheartedly.
I'm not the author of this review. I'm the publisher. But read on. It's TOO GOOD.
I sat down two days ago and read Breaking The Silence from cover to cover. I found some of the statements and feelings expressed so powerful and helpful. I have been sailing along under your generous attention, thinking I can go into this caretaking ahead of me, fortified and strong. I am not so sure but the poems and stories help. The story of "Nora" was beautiful in that she kept having dreams (a cruise) making a scarf for you.
Elaine Okazaki's writing was consoling in that she cared for someone who was "feistie" and she survived and wrote with a sense of humor. I think that is how I will survive, for I live with a man who requires regular doses of humor for both of us.
Red Slider's views of Isobel are so moving. And does he have red hair? The story of how you discovered each other and then became a care-taker-of-a-care-taker is inspirational. "The Day You Became Isobel" was a well written observation as to the "self" within each of us. Not Mom or Dad but who we were before that.
Of course there are Genie's poems so genuine so Genie... and her story goes on. I saw where they closed one of the adult centers and hope it wasn't the one where she took her mother.
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